We Were in Crisis – Carrie’s Story
Carrie’s daughter has an ultra-rare and severe syndrome called Bohring-Opitz syndrome. Their family applied for the Medwaiver Waitlist in 2016, and she was struggling to manage her daughter’s care.
Listen to her story about attempting to get on the waitlist with an ultra-rare syndrome while being in Crisis here:
If you are struggling to find services for your loved one in Florida, or you have questions about the Medwaiver, download our one-page overview of the Waiver here:
To learn more about Crisis Status and the Medwaiver, click here:
What would you like to see on our next SNGG Florida Medwaiver Coffee Chat? Send us an email at [email protected] with your Medwaiver questions.